Forget the Limbs - just tell me what is going on with my lungs!!!
What is the diagnosis? What is the treatment? The prognosis?
I saw my pulmonologist yesterday and he too wants more tests. I get the sense that he does not agree with the Hopkins sarcoid specialist. I feel sometimes as if my life were "on hold" while I wait on medical wisdoms, while my guitar gently weeps...
This disease is not the end of the world and I know that. In the grand scheme of things, it is just not that important. But, it is my disease and I am tired of wondering what it is! An answer would be nice. Adequate treatment would even be better!
