That is the story for this week here in the D.C. metro area! I went outside today just to go outside and the air was so hot and wet it was as if I had stepped into a sauna. So, back inside. Not a good day for my lungs. Heat advisories and code oranges just about every day this past week. Last summer it would not have occurred to me to stay inside because of heat/humidity indices or air quality. I take so much for granted! Until it is lost, broken, or gone!
I saw the pulmonalogist again this week - he had my latest CT scans and pulmonary function test results, and as usual, no specific answers to any of my questions. "We don't know much about this disease," "We don't know when it is time to end steroid treatment," "we don't know if and when it will return," "it is a mystery," "sort of scarring," "less blur but maybe it will get more clear," "your diffusion level could improve, but..."
I have gained a LOT of weight on the prednisone. I also have the steroid face! Round, round, round. So now I am not only sick, I am sick and fat!
It is so frustrating! The one thing that keeps me sane is living each day, one at a time, and not looking ahead to a whole list of "maybe; don't know; possiblies."
