I recently spent a truly lovely weekend in the hospital, and have I mentioned lately how much I love my lung disease? It has given me much to write about and study and most important of all, it has taken up a considerable portion of my limited discretionary time! This is great as I don’t really have to wonder what to do with it (the spare time).
And Prednisone!!! My drug of choice. Once again it has reared its ugly head.
I was trying to get off of Prednisone (under medical supervision) and had dramatic, painful, confusing, frightening results, which ultimately led to my spa vacation in the hospital. Once again contemplating death by suffocation. But that did not last for more than a nanosecond or two as it is not very useful to contemplate. But the past month spending various numbers of days on different doses of Prednisone, as my physician tried to tinker and adjust and readjust has been a steroid roller coaster.
Huffing and puffing my way through the last month has been discouraging. A year and a half of very high dose prednisone, no improvement at all in my lung condition, and now, serious problems when lowering and getting off of prednisone. I was only off of it completely for a week. That week resulted in an acute adrenal crisis and I had to go back on the drug. Now, I am on a higher dose than a month ago. Breathing hard, constricted inhalations, pain.
Every now and then I just need to get my feelings about lungs and steroids "off of my chest," so to speak! I am really not whining - really. Just "venting?"
And more will be revealed.
